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3-day old child was born with a rare disorder in which the heart grows out of the body! Maintenance electrician, a 28-year-old-man and his expectant wife, Kailash, were looking forward to the birth of their child but they did not know that their baby would bring them both joy and anxiety. May 16, at around 11’o clock in the night, Kailash gave birth to a baby boy who has his heart protruding outside his chest! The child, who was born at Shree Maternity and Nursing Home run by Dr Bharat Ateet, is currently fighting for his life at the UN Mehta heart hospital.
Parmar said his wife had been under Dr Bharat Ateet's medical supervision all through her pregnancy. "Besides regular medical check-ups, Dr Ateet had also performed sonography on my wife to check whether the foetus was healthy. Nothing untoward was detected at any stage."
Parmar said he had taken Kailash to Shardaben hospital, too, for a sonography test but no congenital defects were detected there either.
On learning that his child had a rare medical condition known as 'ectopia cordis' (congenital defect of the heart in which the heart grows outside a newborn's chest), Parmar took his son to the civil hospital where he was told that he should take his child to UN Mehta heart hospital for specialised treatment.
Parmar took his son to the heart hospital, too, but as he could not afford the expenses involved, he took his child back to Dr Ateet's maternity clinic where his wife was still admitted. Parmar is currently employed on a contractual job at Bapunagar general hospital.
The infant spent Sunday with his mother at the maternity clinic. On Monday morning, after reports on the newborn's plight began appearing in the electronic media, the child was again shifted to UN Mehta heart hospital for treatment. He is still admitted there and is undergoing treatment for infection.
"I am grateful to media persons for their help," Parmar said. "I have been told that my boy will be treated free of cost. Unfortunately, he has developed an infection because of the delay in treatment. I am keeping my fingers crossed."